Life One Day @ A Time...

I'm sorry..

2009-03-07T20:11:00.002-05:00

To all my faithful followers I want to apologize for not posting. The past few months have been the hardest ever in my life. For the past 10+ years i've been married to the love of my life. I still love him dearly...and would take him back in a heartbeat if he changed his current ways. How he is currently, even though I love him, I can not allow things to continue. I'm not faultless, but even if you ask him, he will tell you i've improved on the issues i've had, and I will continue to improve on myself. Anyone who is a friend of my best friend...my hubby, please reach out to him. He needs you now more then ever.

I've seen a lawyer, and a divorce is imminent. For Caitlynn's and Jacob's sakes i'm asking him to get his OWN place. I pray to God that he does. I want my kids to be able to say "This is Daddy's apartment" not what they would currently have to say.

Dont anyone ever doubt that I loved, well...Love him. He is "MY GREATEST" ... that emotion ranges from Love to Severe Dislike right now... but he was never a mistake...and I dont regret our life. I do want a better life back WITH him though, and do have hope, From him, that it could happen down the road.

I'm sorry to those of you that had been left in the dark. I cant... well wont, talk about all that has occured. But Frank needs to find God again. And I Pray that everyone here can help him see HIM again.

He led me to God....I must now try to lead him back.

Sorry Friends

2009-01-25T18:08:00.004-05:00

I know blogging is not something i've been doing lately. For those that know me...and what is going on here I know you understand. Frank and I have had some marital issues, and we are currently separated working on getting back together. I'm leaning on God during all this, and my best friend...Frank, when at all possible. The kids are doing decent. Caitlynn's improving her behaviour in school And Jacob has been taken off his overnight feed for now! He's getting all fluids during the day, and doing wonderful sleeping though the night.

All I can ask of you ... is to Pray. A lot has happened I will not post here. A lot I dont even want to remember, but what is important is that I love my husband with all my heart, and he knows it. He has started telling me he loves me...and that means the world to me. Now just to get him back home so we can work on our marriage together...as we should.

Here are a few pictures from today, he's borrowed a "toy" from a friend for the weekend. Why do mens toys always get bigger and cost more??

please still pray

2008-12-21T21:16:00.000-05:00

I know i'm not blogging...please understand blog family. I just cant.

Small Small update...

2008-11-30T21:13:00.004-05:00

Today was a good day. Please Pray for more. God needs to be at work in this home....for us to survive this time. No matter what way this trial goes. I Pray He hears our hearts, and answers my prayers in the way He feels they should go. I know what I want...and what I fear. And I just Pray to God that my fears dont come true, and i'm blessed with what I want most in this world.

Prayers Needed

2008-11-13T14:30:00.002-05:00

I cant go into detail but we need alot of prayers here. Please...everyone Pray.

The kids are fine...

Thankful for...

2008-11-08T20:06:00.000-05:00

We're doing a thread on P2P right now and trying to keep it going till Thanksgiving. Each person posting something they are Thankful for each day.

Yesterday morning Jacob took his Zofran by mouth!! Then again last night and this morning! He's taking Meds WILLINGLY!!!! Tonight he took his Zofran and Prevacid orally!

And afterwards started asking for....

CANDY!

He's soooo loving smarties! His eyes got so big when I brought him 2....it's so amazing! He's eating! Not alot...not nutritious ;) but he's eating!!!

Halloween & For Connie

2008-11-01T19:19:00.012-05:00

Hi Connie! Ok first...the video that i've been promising! My singing little man :) http://www.dropshots.com/cnjmommy#date/2008-10-29/18:11:41

He really is adapting well to having only one wing. You can see him having to think about how to do something, but most things he can accomplish :) He has a dr apt on Tuesday, they will x-ray again to check placement. Then the following week will be uncasting it and recasting it with his hand in a better position. His doc is amazing...and even reconized me when he went though my line Thursday. Amazing considering he'd only seen me a total of about 30 min's over 2 different days!

Next...halloween!!! Enjoy!!

Mr. I dont eat...apparently thinks licking a pumpkin is ok. UGH YUCK!

Yes he's outgrown the highchair...it's getting a new home soon. The new little one that will get it is entering this world on Monday :)

The guts are always fun!

He painted his pumpkin! And had a lot of fun naming the colors

Jacob helped a little...

She did 90% of it herself.

Finished pumpkin :)

What were we talking about ... oh yes "W" Sitting! I forgot to tell him to fix his feet. Woops!

Daddy...yes he dressed this way all day. The kids on his bus gave HIM candy! Jacob the Home Depot Associate...original I know, but it fit over his cast ;) And the Jailbird Caitlynn.

Our Jail-Bird... Caitlynn. She must of gotten into a fight getting out ;)

Pop-Pop and Caitlynn with their loot! They got over 500 pieces of candy! (including our leftovers of about 80 pieces)

Happy Birthday to me.....

2008-10-17T19:40:00.002-05:00

Jacob had his follow up with Ortho today. Drive all the way there...wait and wait to get seen. Get in the room only to be told there's nothing they can do today. His bone is at a 45 degree angle after being set on Wednesday. He'll be going into surgery under full sedation on Thursday to take the cast off, re-set it, and put a new cast on. The greatest degree of angle they can accept is 20, so his is way off. He'll be going to school Monday-Wednesday, they dont think he can do more damage so we figured let him go. He doesnt seem to be in alot of pain, tylenol and low dose Lortab seems to be helping. Unfortunatly we didnt know a side effect of Lortab was constipation, and forgot his glycolax yesterday in all the excitement. So he was very very backed up tonight. He's almost cleaned out now though thank God.

The way to spend a Wednesday...

2008-10-16T05:58:00.005-05:00

Jacob fell at school today and broke his right arm. They had to set it and cast it. Then cut the cast to allow for swelling, and ace bandage it so he cant attempt to get it off. Hes on pain killers, and has a follow up apt on Friday. Poor boy is having a very rough day. Please keep him in your Prayers along with some really good quick healing thoughts.

Walk Now for Autism

2008-09-28T08:29:00.002-05:00

Hi everyone!!!

We have found a good way to spend a Saturday...but we found out about it a bit late. Thankfully due to Connie G at work I was already off!!! October 4th @ 8:30 we will be at Lowes Motor Speedway for a Walk Now for Autism event! We're hoping to learn alot about what we can do to help Jacob. And hope he has alot of fun while there too. If anyone can please help us meet our goal of $100 i'd really appriciate it. It's all going towards an awesome cause. Please forward this to anyone you know :)

Thanks!

And with much Love and Gratitude!

The DiMatteo Family
"Making Tracks for Jacob"

http://www.walknowforautism.org/carolinas/personal/jacobd

I know I know...

2008-09-14T21:21:00.003-05:00

Blog wont you?

I will...But I wont promise since I know i'll break it ;)

It's been a hectic few weeks. School went back on August 19th and within the first 10 days both kids had missed a total of 5 days of school. 2 for C, 3 for J. We have a GI apt for Jacob tomorrow...wish me luck I get to take him by myself. And with everything going on I wish I had a 2nd set of ears and another brain...KWIM?

It's 11 days untill Jacob's 4th birthday! Where i'm so happy to see how far he's come. I'm sad to say if you ask him "what is your name? or How old are you?" he still doesnt understand. We are sending cupcakes into school with him, in the hopes that he'll at least lick one.

Caitlynn's birthday pictures were taken on the 14th of August, and Jacob's were taken the 6th of September. I'm in complete amazement to tell you they all came out great! Sears even called last week and they are remodeling their studio and want to hang a picture of Caitlynn up! That makes the 3rd time she's been displayed at a sears between PA and SC!! The lady that did Jacob's pic's (michelle) did awesome!!! She's going out on maternity leave, so we're going back in Mid October for Christmas pictures ;) That way we know they get done well!

I'll update more after Jacob's GI apt tomorrow. School has been both good and bad for Jacob. He loves it, loves his bus...and seems to like school. But there's a child in his class that tried to strangle him and is scaring the kids. I hope he's moved to a place better suited to his needs soon. In the meantime it's hard to tell if Jacob's scared, and he cant tell us 'what happened' but those of you that know my little man know he wouldnt hurt a fly. So it's scary to think someone can cause him danger in a class of 8 children. Please pray he stays safe...and happy in the enviroment he's in.

For you John :)

2008-08-05T15:01:00.005-05:00

Zofran...Our Miracle Drug. Now to get Insurance to Approve a full month of it. He's EATING some food!!! And tollerating 6oz feedings!!!

It's August!

2008-08-02T21:46:00.004-05:00

Caitynn's 10th birthday party was yesterday...INTO....today. A pool/sleepover party! Here's 1 picture...i'll update more later!

I had a long update planned, but then realized I have to be at work at 745 tomorrow morning so it'll have to wait.

Jacob's doing better...even trying to eat a few things. He cant tollerate ANY formula during the day...so we are mixing baby food, carnation instant breakfast, water and baby oatmeal for feeds. So far so good.

He's now on Zofran also, it's helping him sleep tons too...and helping with his night feeds. (he gets 3 cans of nutren 1.5 - 1,150 calories - overnight)

Home at last...

2008-07-29T18:25:00.000-05:00

Home Sweet Home!

2 pokes...he pulled the first IV...and a script for some nausa meds... He hasn't napped all day, i'm he'll sleep like a charm tonight and see a nice new light tomorrow.

He told the doctor in the ER "Thank you very much! Buh Bye!" He told his Ped "Come on...Let go! Pool water!" She said she'd swim with him another time! Anything to get out of being poked and prodded!

Tomorrow will tell.... Pray people...Caitlynn's 10th birthday party is Friday it's a Pool/Sleepover with about 6-7 girls, the worst thing would be to have Jacob in the hospital.

Jacob's aweful week...

2008-07-29T18:23:00.001-05:00

Things went from bad to worse with NO wet diaper overnight despite 400ml's of pedialite and oatmeal.I went to work and left him with mom...giving him 45ml's every hour. He gagged, retched and vomited 3 feeds...keeping in about 35 of each one. I called GI (his GI just left for vacation) The NP didnt like the sound of him and wanted electrolites checked. They called the ped...after a 30 min's of not getting ahold of her they were about to admit him to Greenville Childrens. They finally got ahold of her and got him in for a blood draw. 2 pokes...and VERY little blood...but enough for the test. They also put a pee bag on him... We went back 2 hours later after going for a belly x-ray checking for a blockage...he was clear.

Electrolites havent come back yet, but she doesnt like the "LOOK" of him..and the fact he screamed kicked and cried...with no tears for 20 min's. She checked him over good....and sent us to the ER for fluids. We're home packing up some goodies ... Thomas and A Fish named Nemo! Along with a blankie and we'll be heading there. The hope is after a bolus he'll stable out and tollerate the backpack tomorrow. Home Health is having a backpack delivered tomorrow...they managed to find him a Super Mini! I told her color didnt matter...that was the ONLY one that he cant wiggle out of I will be repairing his other one of cours As for Why he's like this...nobody has any clue.

If we cant work him back to normal feeds by Monday they may admit to figure 'what else' is going on out. We have a follow up with his ped's partner (seemed like a nice guy, he came in to meet us) they said we can cancel if he has a wet overnight, and 3 wets before the apt at 245. Otherwise they want to see him.

Ok Tammy....

2008-07-18T09:18:00.006-05:00

We are back, but it's been hectic. I'll post a few pic's for you :)

One word...

2008-06-19T09:18:00.001-05:00

V
A
C
A
T
I
O
N
!
!
!

We'll be back Blog Family...we're heading to TN for some camping, fun and relaxation!!

He's Just 'off'

2008-06-11T23:55:00.002-05:00

Jacob teacher today said he was just 'off' today. He didn't even play in the dirt. And for Jacob that is huge. She said he kept going over to the same table, with a truck, and watch the tires roll. She could not pull him out of his world.

That just makes me so sad, cause even with Autism you can usually pull him out. I so dont want to see the Autism win and take away his spirit. Days like this make me so sad for him. Autism WONT win! We can fight harder then it can....it seems he may of needed the Extended School Year, I just hope school deciding he didnt need it doesnt hurt him to bad.

Sorry...rough night. He acted the same way at home...and is now sleeping peacefully with his friends.

Swimming Fun - A post in Pictures

2008-06-02T20:13:00.003-05:00

WOW 4th is over!

2008-06-02T06:24:00.007-05:00

Caitlynn is officially a 5th grader!!! Her last day of school was friday, they had 1/2 days the last 3 days. Wednesday she got lucky and got out early...because on Tuesday she won a BIKE at school! One of the 4th grade teachers fund raises for a boys and girls bike for each 4th grade class. Then they raffel them off. Caitlynn won! :D

Her final report card was great...ALL A's and B's...ALL YEAR!

Her summer plans include...Reading all of Beverly Lewis's Abrams Daughters and Heritige of Lancaster County books. *Yes they are MY books!*

Swimming...

Biking...

Seeing all there is to see in and around South Carolina ;)

And of course...Her birthday party that is being held August 1st and 2nd. Anyone want to come help? There should be about 10-12 10 year olds sleeping over.

HELP US!!!

I have to add in here the Southern way to lock up your pool deck. It makes sence...really!

Lock the gate to the deck...

and Remove the steps!

Why...

2008-06-01T19:44:00.004-05:00

That is one word. WHY? It's an amazing word. It has the power to have many questions answered. But in the same breath...can give one person, more questions to ask. I'm am 30 years old. For 15 of those years i've had a best friend....one we will call "John" Ya gotta put a face with a name on a blog...the picture is from 2006, it's a few years old, so just imagine him with a tad less hair. Why? I have no clue! What drew John and I together...hummm I really dont know. But we can read each others minds, finish each others sentences...and make each other laugh no matter the situation.

In the 15 years (OMG that seems like a LONG time...) he's never met my dad. WHY? Beacause in that time my dad has not been in my life. Just as John's sperm donor is not in his life either. Has he inquired in the past...yes, a long time ago. Maybe it's one thing that brought us closer together. Did I mention he's Caitlynn's GodFather? John's going though the big "D" right now...keep him close in Prayers dear friends.

WHY...Does God send some people to us, but take others away. I miss my grandmom...such a dear lady...I dont miss her from 5 months ago...or even 18 months ago. I miss her from 5 years ago, and ESPECIALLY 10-15 years ago. You'd have to know her to appriciate her...she was something else. :D

WHY...Do people that you know, and love, think they know everything you should do, and how and when you should do it? I love my brother...Ready for another picture ;) He's a handsome man...and i'm very proud of the person he's become. AMAZING is a word that would not be bad to use. At the same time he think (at least I feel he thinks) i'm still 7 years old. I do know my mind...and have tried all my life to do the right thing. I've tried my hardest to live by God, and give Grace (You there A?) wherever possible.

Please note this post is not focusing on Frank, Caitlynn or Jacob.

There is another man in my life...His name is Paul. He's been my "Dad" in all sences of the word since I was about 14 years old. Considering I said I was 30...damn that's a long time! (Yes I have a picture of him too :D) In that time he's seen the worst and the best of me. With more BEST to come of course! He's seen me try over and over...he's seen me fail over and over. He doesnt ridicule, he doesnt discourage me from trying again, but at the same time, I believe, understands that...enough sometimes is just that...Enough.

Yes there is one more Man. Most people call him Dad, Father, Dat, Pop and Daddy. I dont know what to call mind. Jim...well ya that'll work. He had some major health problems lately. And all my family, and all my friends send many of Prayers his way. He has pulled through, and though he has a long recovery ahead of him. He is doing well. During this time he has come in contact with my brother (his son) again. And for that I'm so glad both of them have been blessed by reconnecting. I'm so happy for Scott, to be able to connect with a man that as a child he was not able to. For Scott to be able to call him Dad again. For Scott to feel he can pick up the phone from California and talk to his Father in New Jersey. Accross the miles even if they cant heal the rift, maybe they can see "eye to eye" on current matters, if not past. For that, I feel they have BOTH been blessed. Approximatly 2 weeks ago my Grandmom (no picture people...sorry!) gave her son my phone number. She gave him my cell phone, still a PA phone number for friends up there. Those who know me know that phone is ALWAYS on me. At times I cant answer, but it's there. With a Special Son (Mr. Jacob...) you need to be able to be contacted by school or Daycare without fail. I do not have a voice mail, his schoool and daycare know to try back if they dont get me. They do...almost always get me first try. John is also calling alot...and get's me first try. Even if it's for me to say "i'm at work..i'll call you on break"...

A large topic of conversation now from CA to AZ to SC...is "Dad's been trying to call you, but you dont have voice mail so he cant leave a message." To all that have told me that...I do believe that you believe what you are saying. In all honesty though, my phone has not once ever said "1 missed call" and had it be him. He has not, to my knowledge, tried to call...either my cell, or my home phone.

There comes a time in your life that you have to ... well lets just use a quote that i've used since 10th grade.

"you hang on, till you can't hang on, then you learn to let go...I learned the hard way."

I've tried. Over and over, repeatedly over the past 15 years...give or take a year in there somewhere. I cant try anymore. I cant...i'm drained. I have enough to focus on here, and accross the miles, with my family...by blood, and by love & friendship. To keep going round and round with others about "the What If's and the WHY's?"

Why did this all happen. I dont know. I know God Sent me John, and Paul and yes even Scott. I know Jim is my father for some reason...that reason to me is so that I can have Grandmom and Grandpop...Uncle Larry and Aunt Rene and Tammy. (Thanks for letting me know you are safe Cuz!) Why did he give me the start in life He did. Nobody can answer that, but I can say i'm sure i'm a better person for it. There are times i'd never give up the memory for. Can give you dates, times, places...and such fond memories. Some of just Jim and Me. But for the good times, there are hundreds of bad...that I can also give dates, times and places. Christmas eve...some of you will know what one I mean. They are things that scar a child....yes I'm scarred, I can finally admit it.

I have a reason to go on...and a reason to NOT try anymore. I cant...and wont, let my children go though what I have gone though. Caitlynn is 9.5 years old. She's on the A/B Honor roll for the last school year...and will be entering 5th grade as a gifted student next year. Her Grandpop has seen her 3 times in her life. That would average to once every 3 years, except he hasnt seen her since she was 1. Guess it doesnt count. Jacob is 3.5 years old, he understand on a 18mo - 2 yr old level. Cant talk very well, but is learning (has only been talking since he turned 3) is Autistic, has EDS, a feeding tube, Asthma, Lung Disease, RAD and a few others we always forget ;) He's never met his grandpop. In his first 3 months of life we did not know if he would live or die. In the first 2 months it was worse...We were never, ever called, or asked how he was. He did try calling 1x...I give him that. Jacob was under 21 days old at the time. He talked to Frank...Mom and I were at the hospital with Jacob.

Back to "WHY"... I dont know. But I can only take so much....a damn can only old so much water...then it breaks.

Last Day of Pre-3 for little man!

2008-05-27T07:33:00.002-05:00

Seems like just yesterday that Jacob went into the Self Contained class at Houston. That date was actually September 26, 2007! Today is his last day of school till August...where he will enter the same class with Ms. Gant. He's accomplished so much this year! He can TALK! That in itself is a huge step for him! He can count, reconize numbers from 1-10 and knows some colors. Green, blue and pink :) He's reconizing and can name Trees, flowers, water, grass, sky...and some animals. Especially "baby Jaguar" off of Diego ;) He doesnt know ANY letters, but can help sing the ABC song. If you show him a "J" it's a 2, a "L" is a 7....

He's going to have a great summer at Sunshine House...they hired a new teacher, and his favorite teacher has been moved up. They give him what the other kids get during lunch, so maybe we can get a little eating action in too :) I'm sure he'll come home filthy dirty each day, and want to go swimming :)

Max and Ruby

2008-05-22T13:06:00.003-05:00

Jacob is a HUGE Max and Ruby fan lately. It's a big Bunny Sister, and her Little Bunny brother Max. He sings the song so well now :)

The family is still up in NJ...i'm home with the Kids. It's quiet here, but we're making due. Our Prayers are with everyone up in NJ, including Trish's brother Scott who flew in yesterday from California.

The Passing of a Great Lady

2008-05-19T20:35:00.003-05:00

It is with great sorrow that I am announcing the passing of Alyce Anthony, Trish's grandmother. Born July 15, 1929 and died today May 19, 2008. She was a great woman who loved her family and was in return loved very much. She always had a smile and a great sense of humor. It the past few months she suffered great pain from her COPD and failing health. She is now with God and her husband Walt who past away in 1993 & her Grandson Jeff who passed in 1987. Walt & Alyce will be burried together in the Veterans Cemetary. She leaves behind three daughters Judy, Peggy, and Nancy, a son Walt (Bud), eight grandchildren (John Sr, Jason, Scott, Tricia, Kevin, Alex, Allison & Timmy) and seven great-grandchildren (Ashley, Justin, Dom, Caitlynn AJ, Bryan & Jacob). Rest In Peace Grandmom we love you very much.

Frank husband of the worlds greatest wife Trish

Saturday in Pictures

2008-05-19T07:55:00.006-05:00

Frank and I went to our first NASCAR race...it was a Lowes Motor speedway in Charlotte NC. We had a blast... Here are a few pictures of the day :D

Busy Week...

2008-05-16T14:08:00.005-05:00

Wow! A year ago Caitlynn was doing Field Day at a school she had just started in and knew next to nobody. Today she did Field Day with Tons of Friends and had a great time!!

Last Year....

Today after School...WOW what a difference 1 year makes!
She did great in 4th grade. She made the Boyd Top Dog list each marking period (havent got grades for 6th MP yet) and made alot of friends. For Caitlynn that's a huge deal, she always likes people, and people like her, but to have friends live nearby is awesome! She also joined girl scouts...anyone want some cookies? Tell me now and i'll call you next year! 5th grade she'll be playing Violin ... wish us luck!

Jacob is our sick little man this week. He started a FUO on Monday...low grade temp, but acting fine. So we just watched him. By Tuesday night he wasn't tollerating feeds, and was retching horribly. So we took him in. Ears and throat was fine...but his g-tube site looked bad (and still looks aweful) so she started him on Bactrim and Bactroban with Physohex bath's 1x each day for 2 weeks...then 2x each week therafter. They did a culture...and Praying it's not MRSA.

School is going great for him. It's amazing what strides he's made this year, he wasnt talking last year...now is mimicking everything, and is even trying to initiate some words, directions. "Paci Please" And "Water" are his 2 current fav's. He's staying in the self contained class next year, he'll love having another year with Ms. Gant before trying (maybe?) out the K-4 class at Boyd.

Some prayers are needed too.

My Grandmom Anthony...she's in end stage COPD and not doing well. Pray for her peace of mind, her comfort and everyone around her.
My Grandmom Davies, she's undergoing Chemo right now...
My Father...he's recovering from a heart attack and congested heart failure.
My step-Pops (Paul's Dad) he's in ICU for Congested heart failure...recovering nicely so far.
My cousin Tammy and Family while they pack and move from VA to AZ.
And well...for anyone who needs it... Huge Hugs and prayers to all you blog stalkers :)

I've been a bad...

2008-03-27T06:38:00.005-05:00

Blogger. But things get hectic...and I tend to forget :)
Here are some picture from our "impromptu" photo shoot yesterday morning. Jacob's was entranced with that magazine...of course he was, oh yes....it was Thomas!
I love the new seats on his bus too...they look nice and safe :D

finally...an update

2008-02-28T08:34:00.002-05:00

Hi All! (Chelle, you asked for it) It's been very very hectic around here the past few weeks, and I admit that i've been a very bad blogger!

Frank is back to work!!! He started working for School District 7 almost 2 weeks ago. He's driving bus for them, and so far loves it.

Jacob is back to daycare...they were so suprised (the director knew, but didnt tell his teacher on purpose to suprise her) to see him! He's getting in a bit of trouble there, opening the doors to the playground and trying to let everyone out to play. But overall he's loving it. Transportation is picking him up at home for school, and dropping him off at SH for daycare.

Last Friday Jacob had his Modified Barium Swallow study...he PASSED IT! He is now officially allowed to try to eat. Now getting him to eat is another story, but at least now we know that there is no danger to him in doing so. WOOO HOOO! They have reccomended feeding therapy 1x a week for the next 12 months. But we have to find out where, when and how to get him there. And preferably if the therapist can come to him.

Oh yes!! And today he answered a WH Question!!! He pointed to the wall and said "CLOCK" I said "yes, a clock. What numbers are on it?" And he said "one, two, three...up to ten!!!" OMG I'm shocked, and sooo elated!!!

Jacob's spring and class school pictures were done last monday... more to come on that when I get the proofs! Caitlynn's are this coming monday...same here, more to come!

Caitlynn started Girl scouts recently. She's a Junior and is in a troop with 4 girls from her school. Tiffany, Lily, Rebecka and Nora. She'll be going every other Sunday...and i'm sure will love it! She hasn't been to a meeting yet, but that's cause it's cookie time. She's going to help them sell on Saturday at the Walmart near my work. I'm off, so is mom so we can go have fun! LOL

I've been doing ok. Getting up at 6am...and at times working till 1030 (tomorrow schedule) is a killer on me. But I know i'll adjust...right? I sure hope! Work...well it's work, right?

We are planning some fun this summer though. We're hoping to make it up to PA in early summer...after my vacation time is available the end of April. School is out here the 30th of May so maybe right after that. John, Kerie and Kammy might be coming down the end of June...we're planning ----- NOTHING! Sounds fun doesnt it! Just parks, pool and relaxation!

Happy 84th Birthday!!

2008-02-13T23:48:00.001-05:00

Happy Birthday To you! happy birthday to you!

Happy Birthday Dear Grandpop! Happy Birthday To you!!!!

We love you Grandpop Davies...and miss you ohhh so much!

I hope your day was great...and this year is a year of surpises!

To LTM...

2008-01-31T12:10:00.001-05:00

As I sit here sorting though the Christian music on the computer...so that Frank can put it on a CD for the basement workout room. I keep hearing songs...that the only thing that comes to mind is how much we miss you guys. I've been heard to say that the hardest thing about this move was leaving LTM. All of you have touched our hearts and souls...and we miss you all dearly. The music, the love the faith...and the Joy at all the small things, the companionship, the laughter! Oh yes the laughter! There's not one thing we can say we miss more then the other, it's all one..one package that as a whole makes one wonderful body of people and faith.

We will be back someday, we'd like to come visit this summer and Langhorne is one of our first stops. So much has happened since last April when some of you came to see us off. We will never forget the kindness and caring.

Caitlynn's now 1/2 way though her 4th grade year, she has a best friend that lives just up the street. She's liking it here, but does miss her friends there. Shes still in gifted classes, though not as challenged as she should be. She's getting ready for her first Science Fair and making a Math board game right now too :)

Jacob's in daycare (when Frank gets back to work) and loves it there! It took some teaching for them to learn his tube and his feeds, but how he's thrieved there! He went in around May of 2007 as a little boy with little to NO communication! He now talks! OMG Jacob has learned to talk!!! Thank God! He still has very little communication, but he tries...and it's coming! He is also in school...yes a real elementary school! He's in a self contained Special Ed class for 3/4 year olds. He will get 2 years of this before they evaluate him for a K4 class...if he cant handle that he'll get this class again and they will reeval for Kindergarten...we're praying with the right support he'll be able to transition to the same Elementary that Caitlynn goes to. But by then she'll be in Middle school! He still wears braces, and we're waiting on his medical stroller (convaid cruiser) he's now 34 pounds...to those that know the struggle we had with his weight...what a glorious thing it is to see meat on his bones, and not just bones! He's 40" tall..which is in the 95% for height. They just Diagnosed him with "benign Joint Hypermobility Syndrome" This in no way is the answer we are searching for, but it's a start. They are very worried about his head growth. His skull is 44cm....very very small for his age. The doctor is requesting records from CHOP, and hopefully we'll get answers. For now though...he's sleeping great, his foods (tube) are agreeing with him...and out of the last 8 weeks we've only had 1 week where he was throwing up...and that was due to an ear infection. PTL!!

Frank...he's currently out of work. They downsized...and let him go. He's been out since 12-6 and it's been hard since my stepfather is also unemployed at this time. So it's mom and I working...that should change soon. Frank is going for his CDL to drive for the school district here. It's full time, full year work. They do maintence during the summer months. We're praying this comes though, and that the medical benefits are well worth the smaller paycheck.

Me...well alot has gone on here with me. Last June I started a diet. I rang in at 271 pounds, my heavest ever. That is the weight I was when I left...and was very unhappy with myself. I now am 228 pounds and 58 pounds away from my goal! It's slow...but pretty steady! I also got a new pair of sneakers...sounds pretty uneventfull, but they've changed my life! www.zcoil.com is what they are, and they've taken away almost all the pain in my feet! I'm still working for Home Depot, and coming up on 5 years in May. At that time i'll have 3 weeks of vacation to splurge on ;) PA here I come! We're going to Sesame when we come up...though we are not sure when that will be. Jacob is reconizing Elmo and Big Bird now...so it'll be awesome for the kids. And bad parents...Caitlynn's never been there! LOL Yes we lived sooo close for so long! Woops!

Well God bless to you all...we miss you!

Anyone that wants to come on a vacation in the south...you are more then welcome here! We have a spare room downstairs...and a pool (aboveground) outside. The more the merrier!

Lets just say...

2008-01-19T14:03:00.000-05:00

I had to spread the word too.

Andrea's Blog
http://andjonbabyluke.blogspot.com/2008/01/spiritually-deep-for-special-needs.html

Trish's Blog
http://mynewnormal.blogspot.com/2008/01/things-not-to-say-to-special-needs.html

Ladies...between the 2 of you there is not more more to say.

The "he looks normal to me" comment though...eats at my soul.

What do you do?

2008-01-12T12:28:00.000-05:00

When you dont know how your next bill will be paid. What do you do when you feel like you are at the end of the road? When Prayer doesn't seem to help, cause you've prayed that prayer so often in the past 5 weeks. How do you wake up in the morning, knowing that it'll be just another day, at the same old job...that will only net you enough to make the bare minimum...and you STILL wont be able to pay for Food, Gas, Mortgage and car insurance. We're not even mentioning heat, electric or the other bills that are waiting. Including Caitlynn needing a dentist apt...even with Dental for her, I cant afford the visit. Where do you turn...

Unemployment "somewhat" came though...but we wont be getting a back check since Carolina Fire said he was fired for "poor work performance" not what they told him...but hell it's their word against his. Oh ya...did I mention that they have not paid Frank his final pay check yet? http://www.carofire.com/ We wont get any unemp payments till 1-26 they "disqualified" him for 8 weeks due to 'they said' ... and they cant do anything about not getting a final check. We are going to the labor board on that...and have a chance (laugh, laugh) of getting 3x what they owe him. But again it's "he said she said" and the burden of proof. He's contacting the place he inspected on the 5th (day before being let go) for a statement saying he was there. And PRAYING they will give him one.

I feel like I cant stand for the weight on my shoulders...I dont know what to do, or where to turn...

Andrea...Thank You...I needed that prayer today.

Wishing everyone...

2007-12-31T21:42:00.000-05:00

A very happy, healthy and wealthy ;)

(in love, life and finance)

2008!!!

Little Dare Devil

2007-12-27T17:54:00.000-05:00

Last night I got to run Jacob to the ER. The Little Daredevil fell on something and split open his chin. I was talkin to Trish when all of a suuden I hear a scream and crying. I go to look in on him to find out what haapen and he is just crying I didn't see anything. I hang up from Trish go to change his diaper and put him in jammies and there is blood on his chin. The good thing is he didn't nned stitches the Dr. just used durabond glue to shut the wound. So now both kids have split open there chins Caitlynn at 2 and Jacob at 3. We call her crash and now he is daredevil. I think I need to build a rubber room and keep them both in it. LOL. Have a good one all.

Merry Christmas All

2007-12-25T18:00:00.000-05:00

Merry Christmas Everyone. I want to thank all of you for your prayers and support for our family. At times it can be hard looking at Jacob and seeing what he is unable to do But I thank God that he has shown me not to look at what he can't do but at what he can. Jacob may have disabilities but he doesn't let that stop him from having fun. It is truly the work of God that Jacob is able to be here and do what he can. My faith has had many ups and downs but every time I look at Jacob I can see God and how Glorious He is. The Bible tells us that in our weakness God is made strong and that truth can not be more evident then in Jacob. Everyday he says a new word or does something to let us know he is not handicapped or disabled but he is handy capable. During this Christmas season I want to pray for all of you who have been so supportive with your words and prays. Jesus came to this earth to show the Glory of God and I believe Jacob was put on this Earth for the same reason. May God be with all of you and your Families. Thank you again and a VERY MERRY CHRISTMAS.

Frank DiMatteo

Ring Around the Rosie...

2007-12-25T10:14:00.000-05:00

Jacob sang a song for us!!! Hope you enjoy it as much as we did!

More on Christmas soon...gotta get everything in the oven so I can upload pic's!

A long time...so sorry!

2007-12-17T21:25:00.000-05:00

I know it's been a long time since my last update. Things on the Jacob front are doing great! It has been 18 days since Jacob has thrown up! He's tollerating his feeds great!! And he's GAINING weight again!!! Not sure on a weight but he's hit 31 again (and again and again I know...) but it's great to see it go UP! A 40 inch 30 lb little boy is way to skinny. He's sleeping though the nights, maybe a toss or turn here and there, but we're getting 90% full nights of sleep. What a difference that would make if I could shake my cold ;)

Caitlynn loved her concert, and today went to 2 nursing homes and the district offices to sing there. She loved chorus and will be in the spring chorus too. She got the Honor roll for the 2nd time (Top Dog to Boyd) and since she got it twice they are going to see a movie on the last day of school this year. We think they are going to see Alvin. Only 3 days left of school and she's excited!

Jacob now get's his bus here. It picks him up right out front...and he's loving it.

Unfortunatly the reason he get's picked up here is because Frank lost his job 2 weeks ago. So now Paul and Frank are both unemployed. IF (and i'm hopefull, but scared) Frank get's unemployment (they are sending for verification of employment in PA) they we should be able to make ends meet without daycare. But if not...well I dont want to even think of that. I will be checking into SSI for Jacob and whatever other help I can find if he cant get it. Cause we cant put Jacob back in daycare till Frank finds a job that pays enough. Some employers are so heartless to fire/lay off or ANYTHIGN this time of year. It's put a huge damper on our buying power for the kids. Thankfully Jacob doesnt even understand Christmas...though he can say "SANTA" now :) Caitlynn does not believe in Santa so we explained to her that without daddy's job we cant get her everything we wanted to (a computer was our top item for her) but we will try to get what we wanted for her after daddy finds another job. Still very hard on her, but we are together with a roof over our heads. We'll also have company on Christmas day. Adam (co-worker of mom and I, and worked with Paul) will be joining us. It's very funny that Adam is the guy I had the huge run in with on my first day at this new store. Now he's one of the family.

We did get a night out at Steak and Ale for HD's christmas party. Free food for all 4 of us!!! We found a sitter for Jacob...Amazing! Our neighbor (74 years old..I believe) agreed to watch them both. I have friends (not you John boy, or Kerie) that scare away from him. That tube scares so many that they dont see what a joy he is. He's hard, and complicated and WILL NEVER BE HEALED, but he's a love and a pure joy. He started talking 11 weeks ago, and now has over 50 words he says, and i'm sure he 'knows' more.

Today was hard at work...I dont post about work much here cause people there (Hi Connie) know this site. I talked to HR today (for the 2nd time in 2.5 weeks) about FMLA and trying to find out what paperwork I needed, and should it be filled out with his SC doc's instead of keeping his CHOP doc's on file since they dont see him any longer. Our new HR either comes off very bad, OR is very mean. I dont know which, but I bit my toung and walked out telling him 'you know where to find me when you have the papers I need'....after talking to Connie and Krista and ending up in tears. I talked to L our store manager....and I think things will get straightened out. But for someone to insinuate that my sons disability is not permanent, and that FMLA has run out and I could be terminated (with 2 people already unemployed in the house) the next time i'm out even for him. I just broke down. Jacob is permanently disabled in accordence with SSI, AMERICA considers his disabilities life long, and at one point were life threatening. He's lived, and is doing AWESOME! And for that we thank the lord above....someone watched out for that baby! But to hear someone that knows nothing about him say what he did..

Ok i'm stopping.

Overall we're on that roller coaster...looking for a pitstop ;)

Check out this site all. It was sent to me from Grandmom Davies and I LOVE it!!

http://okangel.250free.com/ThereAManInHere.html

Caitlynn's artwork!

2007-12-10T16:19:00.001-05:00

Caitlynn's artwork is in a gallery :) And availble to buy ... LOL

https://www.firstartworks.com/ShoppingCart/ArtworkDetail.aspx?step=1

The access code is 2007211616 incase it asks!

Her school did this for all the kids so they can see their artwork framed.

She's also singing in a concert at school tonight. And was in the Drake Festivle last week. That will be aired locally on 103.3 on Christmas Eve and Christmas Day.

Pictures to come... :)

Picture post :)

2007-11-30T17:56:00.000-05:00

Jacob the modern day Thomas the Train reading Cowboy :)

Caitlynn's 2nd report card (out of 6 marking periods) she had improvement in all grades and did wonderful!!

Celebrate with me!!

2007-11-30T09:03:00.000-05:00

Ok family, and Blog Family! I started my weight loss journey the end of May 2007. It is now almost December...and we've come a long way baby! Little by Little things have happened. My new shoes (http://www.zcoil.com/) have allowed me to regain my life back. And by doing that could regain control of walking, running...and yes, just playing! We went camping...and I went HIKEING! OMG what a blast...and something I could not of done a year ago...or even 2 years ago. I've changed my eating patterns, i've cut out 90% of the soda I used to drink. And have been drinking about 70-100 ounces of water a day.

As of today... November 30th 2007...I weigh...

230 pounds! I started this journey at 271 pounds!

So I have lost FORTY ONE (41!!!!) Pounds!!!

My journey is not over...as you can see from the chart below. I have a current goal of 171 pounds. 100 pounds total to loose. I've gone from a TIGHT 26 to a loose 22! I'm thinking I could end around a 14/16 or less! I havent seen these sizes in over 10 years!

Stay tuned....

incomplete answers...

2007-11-28T11:11:00.001-05:00

Now we have more.

Took Jacob back to the ER this morning....6am ish. His breathing was labored, coughing all night. Retracting in his throat and flaring at the nose.

His O2 sats were around 90 when we got there. Thankfully a inhaler treatment (3rd one already) did help some.

They've put him on prednisone and 'bed rest' LMAO ya like he'll stay in bed without screaming!

So he's out of school (and i'm out of work) till the end of the week. They dont know if he has something "on top of" the ear infection causing the high feever (over 103) but dont want to risk it. Please pray this works. This poor kid has been though alot since the begening of the month...and it's taking a toll on all of us.

We have answers....

2007-11-26T21:31:00.000-05:00

Jacob has a ear infection, and a red throat. The quick strep test came back neg, but doc was not sure. He's on amoxicillian for 10 days....and is cleared to return to school on Wednesday. So out of about 40 days of school so far...he's missed 7 (tomorrow included) and school sent home a 'truancy' letter. If this continues (Rolling on floor laughing here... ) we will have to work up a plan to correct this pattern. UMMMM they do understand he's 3 .... right??

Thanksgiving weekend...

2007-11-26T10:21:00.000-05:00

Well I know I havent updated...and i'm so sorry! I was sick for thanksgiving, and working the whole weekend too. Scott came in Wednesday night...and we're enjoying our time with him. Caitlynn loves seeing Uncle Scott, and Jacob...well he's wondering who the stranger is in his house ;)

Jacob had a awesome day at daycare on Wednesday...proceeded to have a great weekend...then got sick last night. Never fails, todays a school day (number 5 that he has missed) we've already been sent home a Truency letter for him! OMG he's 3 years old!! What do they think he's just skipping school to watch Thomas? Darn him for sneaking back in after we leave! So we're writing him notes for school...but I wonder how many of them they will accept before we have to take him to the doctor for every bug that he catches.

I'm thinking today may be one of his FUO's...he woke up with a feever, but we couldn't find the thermometer, but he was hot all over. He now feels slightly warm...but is acting fine, and tollerating his feeds. (that's a huge improvement over the past 2 weeks!) He was even out playing with Scruffy. Scruff would bark...then stop. Jacob would bark back...UGH the noise! ;)

We think we have figured out Christmas pictures....now if only we could get the kids to listen, and sit. This could take awhile!! LOL

I promise to try to get some pictures taken today and tomorrow before Scott leaves. I would hate it if I didn't get any pic's of him with the kids.

Does it ever end?

2007-11-19T08:06:00.000-05:00

Last Monday Jacob had a GI apt. He had lost 2 pounds. So the doctor and us had a feeling he was not absorbing his formula like he should...and decided to change him to Peptamen 1.5. It's more broken down, and should be easier to digest. It didnt go so well...he ended up in the ER on friday dehydrated...and needing to wear his backpack from Thursday afternoon till Saturday morning. We've gone back to a mixture of Nutren 1.5 and Nutren Jr...and Praying this will work. Yesterday he only threw up at 1 feed, and retched badly at 3. Much better then throwing up at 4...We have not weighed him since this fiasco started...but will tomorrow. Daycare had us come get him on Thursday cause they were afraid he was sick sick, not just feed sick. Thankfully the ER checked him out... Xray of Head, Chest and bowels (he hadn't had a poop since Tuesday) and all was fine. He did finally poop on Saturday...5 times. So he was backed up some...but it was pretty normal, and not hard...so not bad.

Hopefully all goes well today...and he tollerates (as to be expected) his feeds at school and daycare. Mom-Mom is on call this afternoon...since I have to work. They were short a closer for today so i'm working today, and getting Sunday off.

I have a few cards to buy...and a bank to stop at...so off I go before work. Keep our little man in your prayers. Also add in Kerie, Hannah and Jack & Aunt Judy...And Grandmom Anthony. It's been rough all around the past month they all need all you can give.

Shapes...

2007-11-09T19:45:00.000-05:00

Tonight Jacob sat in his chair while we had dinner. We gave him paper and crayons...he had a blast :)

I drew a Circle and Square on the paper, these are 2 shapes he know, and I was getting him to say them. I decided to throw a curve at him. I drew a triangle....and he SAID triangle!!! So I drew a Star...and he SAID Star!!! OMG he's doing awesome!!!

I'll get it on video this weekend ;)

Name the Trains :)

2007-11-05T07:31:00.000-05:00

Jacob loves his trains...so much so that he will say "wooo wooo" if we're going near train tracks, even if you have not seen them yet, he knows where they are!

School Pictures

2007-11-01T15:07:00.000-05:00

Jacob's pictures came back yesterday. The Proof's that is. They arent bad, but not great either. It looks like he's trying to climb off the stool they put him on. We will get some...but not a large package.

We're getting the same package for Caitlynn's. We're not very fond of either set of pictures...and we're Praying! That their spring pictures will be better. That's when the class pictures get done also. Seeing Jacob's class pictures should be interesting...they have a bunch of cute 3 yr olds there.

OMG! I'm in Shock!!

2007-10-26T20:53:00.002-05:00

Jacob let me brush his teeth tonight!! And was liking it! He kept getting his toung in the way, but he did awesome!!

It took 3 long long years....but he's accepting the toothbrush finally!!!

Caitlynn indian project grade came back..she got an A!! Awesome Job!

Here's a picture of the project for those that didnt see it :)

There was also 2 writing assignments. One was a journal entry telling the day in a indian childs life. The other was a story using pictures for words where possible. She did awesome!

Thirty-Two

2007-10-23T20:24:00.000-05:00

What a wonderful number that is!! Jacob now weigh's in at 32 pounds!!!

He's doing wonderful the last week or so. We have completly switched around his formula. He's now on Nutren 1.5 instead of Nutren JR. The difference is the 1.5 has 15 more calories per ounce. So it's like getting 1 and a 1/2 cans of the JR...in the volume of 1 can! It's awesome! He get's 3 to 3.5 cans a day, along with 500 ml's of water and Carnation Insteant breakfast at night. He needs something in his belly to sleep. To him that is 'the way it should be'... His pump did malfunction last night though, a new one was sent out today after calling our Home Health company. His GI also sent a script for 6 extensions per month...we'll see if we get them, it's up to insurance. But with him in school and daycare they are really needed. The script that was sent over for his formula was processed right away, and will be here the end of October for his November order. Since we still have a couple cases of the 1.5 from Jennifer we are all set to go! (Thanks Jen!!! And John for bringing it to SC!)

We had Caitlynn's fall festivile at school tonight. She had alot of fun, and went on a hayride even. Here are a few pictures from tonight :)

Tiffany... Not sure ... Lilly and Caitlynn on the hayride :)

Also wanted to give a Shout Out to Nana Hilary! Thanks so much for my birthday gift! You are so much missed by all of use! Hope to see you soon!

Boo at the zoo...

2007-10-21T18:21:00.000-05:00

http://smg.photobucket.com/albums/v90/Mommy2Caitlynn/2007/September%20October/?start=all

Click there...and click the pictures to enlarge...Enjoy! :)

IEP... & Cleaning Up

2007-10-21T09:44:00.000-05:00

One of the specific's of Jacob's IEP was they wanted him to help with 'clean up'. He's (as many autistic kids) is resistent to change, or to change what they are doing at that time. Playing = more playing... :)

Yesterday he was dumping rocks out of mom's flower's from G-Ma. I stopped him and told him he had to clean up.

As I was helping him put them back I hear him going "keen up, keen up" YAY!!! He knows he has to clean up! And was helping put it all back :)

I went to Wal*Mart

2007-10-19T19:19:00.000-05:00

Ok that doesnt sound to bad, right?

I decided my jeans were totally anoying me being to big. But I havent bought jeans in a 'regular' store in 3 years. Sooo I tried on a pair of 24's (current Jeans are Lane Bryant 26's, were snug when puchased in april) they were to big!!! So I tried on 22's and they fit...comfy!! I wanted black though, and they were out so I'll go to the other walmart on Sunday and get the black

WOOO HOOO!! I can shop at cheap (er) stores now!

I just dug in the back of the closet, and found a pair of Jeans that were given to me about 2 years ago. I remember never being able to get my thighs in. I'm sitting here wearing them right now :) WITH room to spare!!

Jacob got to try...

2007-10-18T17:17:00.000-05:00

To eat!! And he did awesome! He ate about a 1/4 of crustless french toast. Yummy!!! We're still not allowed to give him liquids, he's been aspirating them.

Here are some pic's (Connie) enjoy!!

And all ready for bed. What a smily fellow he was!!

IEP Update

2007-10-16T14:55:00.001-05:00

I got to the school early and tried to see Jacob getting on the school bus. I thought I parked far enough away for him NOT to see my van. But yes...he saw it and tried to break away from his teacher. So I got out and I got lots of Jacob style kisses He told me - One ***lots of Jacob babble*** a few times...I so wish I knew what he was trying sooo hard to say! He got on the bus like a champ even though Mommy was at the school, I was so proud of that! I did have to tell the bus driver to move the chest clip up she had it down near the buckle Lets just say i'll be following up on that.

Speech was pleased with his progress, but he screams though parts of the sessions. It's 2x's a week for 30 min's each. Non of it is 1:1 which I was NOT pleased about, and vocalized my concern. She did say if a spot opened he'd be 'one of the ones' in line for it.

They did need a chair in the lunchroom with a strap for him. He's interested in other kids lunches, but cant have anything yet. After talking to GI we may send in some things like gerber puffs for him to play with during lunch.

They want him to be able to sit for a story for 5 min's ... and play with things appropriatly. All things you have may have heard us mention before. Alot of it has to do with the Autisim, but alot of it we just call "Jacob". They sound like decent goals all around. She did say if I emailed her the form I made up she will print it out, she volunteered after I told her I was out of ink in my printer ABA therapy...not available UGH, would have to find a private place to get it for him.OT and PT - He will be evaluated, but can take up to 7 weeks to get evaluated. Then there will be another meeting based on the findings.

Sooo Hectic

2007-10-14T20:34:00.000-05:00

Things have been in an uproar this past week and a half. Jacob stopped an antibiotic on the 7th for step throat. It was Ceftin...On Tuesday he started with blowout diahreah. It was awefull! School was affraid it was contagious, and they said he had a feever. Ok out of work I was for that day, and off to get him. Got him home and it was bad...but no feever? Well low grade, but that's "Normal" for our boy! We 'thought' it might be the CIB added to his feeds to up his calories. So we cut that out and added in banana's... and LOTS of them! At least they were the high cal ones and it almost made up for the lack of CIB in his feeds, by cutting that out we were missing 260 calories. The next day seemed better....we were ohhhh so hopefull that we found the problem. Then school called again, and we called his gi. Gi said they had nobody in the office to see him, and we explained how quickly he can dehydrate, and the last time we saw him like this was a 3 day admission to CHOP. They said to take him to the ER. So Frank left work this time...he had a 100.3 temp when he got to the ER, but again, that could be very normal for Jacob - 99.6 to 100.8 is his NORMAL. Sometimes it's hard to tell what is sick and what is Jacob.

They have determined that he had a severe allergic reaction to the Ceftin that he had FINISHED on the 7th. He had no problems while on it, but apparently it kills the 'good' bacteria in the digestive track. And with his compramised GI system it threw him all out of wack for lack of a better term. So we are giving him culturel for a few days to get him back in order. And we're down 2-3 a day. So he get's to go to school with a note tomorrow!

Tuesday is his IEP at school, wish us luck everyone. We are a bit nervous, there are some things he needs, and with his Autisim it's imperative that he get's the therapy he needs. But i'm worried that with him talking some now they will think he doesnt need it. I also sent a note to school on Thursday asking how he's doing in the lunchroom. It didnt have to be a long answer. Good, bad or otherwise would of been fine! What did I get back? "his IEP is on the 16th" NO DUH!!! I was there when it was scheduled! UGH!!! I'm so Praying for a good day.

Good news though, even with 2 illness he's stayed ABOVE 30 pounds! He almost dipped below...and after getting him over 31 it's still a huge loss, but at least he kept over 30 :)

Name the Apostles...

2007-10-08T10:13:00.001-05:00

Frank tried to get Jacob to repeat the names of the Apostles.

After James...comes...

Gordon, Henry, Toby....Thomas...

Yes he started naming his Thomas the train characters!!! WOOO HOOOO Just the talking is great! I dont care who he names ;)

30 POUNDS

2007-10-08T10:12:00.001-05:00

I've lost 30 pounds...yes 30!! WOOOO HOOOO! I have 70 to go, but suddenly that seems possible! I also turn 30 in a couple weeks...WOW how the time is just flying by!

New update...

2007-10-05T21:32:00.000-05:00

On Jacob. :) Sorry folks, the site I had linked the pictures from went down. We lost that last 5 days of posts. So I lost the pictures. I put them up on Photobucket now...so here goes! This link his of his new button. A bit traumatic, and for once i'm glad he's not very verbal! I can hear it now... "my mommy and mom mom held me down and let this strange lady in scrubs....." Ok you get the picture! I pray he wont remember this when he's older....but I know he remembers it right now. He's very defensive of his belly around feed times. We're hopeing it get's better this weekend, otherwise we'll have to have him seen next week.

http://smg.photobucket.com/albums/v90/Mommy2Caitlynn/2007/September%20October/Granulation%20new%20button/

This 2nd link is to his birthday party pictures :) He had alot of fun playing with Aidan (age 3.5) and Jonathan and Eli (age 6 month Twins) I'm not sure he realized anything was 'special' about the day though. We did decide that Santa is not wrapping his gifts this year. I helped him with the first gift...and then Aidan, Caitlynn and Tiffany (C's friend) helped with the rest. He didnt understand that there was 'cool stuff' in that paper. :( Kinda sad to see knowing what most 3 yr olds would do. BUt he's come a long way, and we are super proud of what he has done!!

http://smg.photobucket.com/albums/v90/Mommy2Caitlynn/2007/September%20October/Jacobs%203rd%20Birthday/

The number...

2007-10-03T19:57:00.000-05:00

Means alot this year, does anyone want to try to guess why??

There is a double meaning....

Caitlynn's Asking you...

2007-09-28T10:10:00.000-05:00

To help her raise money for her School Walk for Diabetes.

Hello Friends and *Blog* Family, I am writing to ask you to help me raise money for the American Diabetes Association. I will be participating in School Walk for Diabetes, a fund-raiser that teaches kids about getting exercise and eating good-for-you foods. The money I raise will be helpful to all people with diabetes. Did you know that more than 20 million people have diabetes and more than 6 million of them don't even know that they have it? That number includes many kids too.

You can help me by making a donation online at my personal Web page. http://main.diabetes.org/site/TR?px=3916057&pg=personal&fr_id=4890

Diabetes effects alot of people in my family. I hope you, or even someone you know, may be able to help me donate. Please forward this on to anyone I may have forgotten to add to this email! *blog posting* Thanks soooo much! Caity!!

To donate to me and my School Walk for Diabetes, click here. http://main.diabetes.org/site/TR?px=3916057&pg=personal&fr_id=4890

First Day of PreSchool!

2007-09-26T12:22:00.000-05:00

A blog in pictures...Enjoy all! I will say he was telling me "square" and "Circle" while pointing. And was counting 'one, two, threeee' the people on the table. The pictures are taken in his Daycare's entry way while waiting for the bus to come. He's on the bus, 3rd seat from the back.

3, Yes THREE Years!

2007-09-25T15:45:00.000-05:00

WOW it's so hard to believe that Jacob is a 3 year old today!!! My handsome man has hit a new milestone....3 years old! He doesnt seem to care what the date is. Though he did like getting his giftcard from Gma and Pops and his Shirt, Trains (he slept with them) and book from Nana Hilary! His party is not till Sunday...but that is sneaking up on us fast! I think (humm not sure yet) that we may get him a bean bag chair..he loves the one at daycare.

I have to run out tonight to get him a 2nd lunchbox...guess he get's a cool one now since he needs one for daycare and one for school.

Jacob starts at Houston Tomorrow...we're having a rocky start, but they seem willing to try to figure out solutions to most everything. Keep your fingers crossed that things contiune to go well. They did just add an aid to his class so it's about 1:2 or so ...3 aids in the class and 7? ish kids. He get's to ride the bus there, but then I get to meet him there since they need me to show them how to feed him. I wish I had known in advance I would of set up a meeting ahead of time, poor kids going to wonder why mommy is leaving him in a strange place with strange people. :(

Houston (Elementary) we have...

2007-09-17T21:20:00.000-05:00

Lift off! Jacob will be starting at Houston Elem on the 26th of this month. It's from 8:30-2 and has a cap on 12 students. Current enrollment (including him) will be 6-8 ( depending on a child who might be entering). There is a teacher and an aid in the class, so it's a great ratio.

On the sad side...The school Spec. Ed director who was very leary of J's Autisim DX...(she doesnt believe a child should be dx'ed under 4 for Autisim) observed him in his daycare today. After talking to his teachers there (he's been there for 5 months now) she is agreeing that the DX is accurate. there was always that hope that maybe it was not right....especailly now that his talking is starting. Oh well...he's still my sweetie!!

Good news also!
The cut off for Kindergarten in SC is September 1st. Since they are starting to serve J when he turns 3 (07-08 school year) He'll still be 3 come the 9-1 cut off for K4. So he goes back into the 3's. Then he'll go to K4, then K5. If he needs the inclusion room still they will try to transition him for parts of the day to a typical class. Essentially he'll get a extra year of preschool (which he needs! ) without me having to fight for it!! To be continued...I'm going to view the school on Thursday.

Video Sunday?

2007-09-16T14:44:00.000-05:00

Well...let's see if I can get them uploaded! I've gotten a few video's lately of Jacob talking. Mom's camera takes great video's ;)

Well it hasn't uploaded yet, so we'll sneak a few pictures in! These are called "uh oh I got caught" He's not allowed food or drink right now. But how can you say no when he's begging. Thick or hard foods are normally ok with him. It's soft foods and liquids that are causing the most problems. So when he found my cinamon toast this morning...we let him have it. 99.9% of it ended up on the floor anyway.

Caitlynn having fun posing for the camera in our room.

Another day...

2007-09-14T13:09:00.000-05:00

And finally a delivery!! Our Home Heath finally delivered our first order of supplies! Though they only deliver 2 weeks for the first order...after that it will be by month. We were able to get his Carnation Instant Breakfast though CRS (state org that helps kids with certian disabilities) So we're set on that too! Sooo much of a relief! Now...where to store it all! :) They didn't get the extension size right, but that's ok we can still use these, and they are working on getting the correct length.

The school district called, they are sending someone out to 'observe' Jacob at Daycare on Monday. I guess they are still undecided on where to place him. I will fight tooth and nail for Houston Elem...I think it's a much better fit for him. They dont want to meet with us till the day before he starts school. That's not settling with me...I want the chance to have the school nurse meet him and learn his tube feeds the week before...not the day before. We're not talking about a boo boo and a band aid...it's his nutrition. Speaking of Nutrition...Jacob has gained! He's hit 31 lbs...sooo amazing! We never thought we'd see the day!!

On the loss side though. ;) I've lost 27 lbs!!! Also Amazing...again I never thought i'd see the day! My journey is not over...I have 73 pounds to go to my goal! Doesnt seem like as much as 3 months ago when this started. I havent bought new clothes yet, but by christmas it'll be necessary. What a wonderful though! (except for the $$ it'll cost ;))

Caitlynn is doing great in school. She's loving 4th grade, and learning lots of lessons! Shes averaging about 90+% on all tests. Except for the one lesson...the lesson is "you must study your vocab words to pass the test" .. that was a 40%...and she got an F. Her first ever...in 5 years of school, so not really bad. She now know's she cant just slide by ALL of 4th grade. Part of it she will...Last year in Pennsbury she was learning on a 4th grade level for 80% of her classes. This year with a different gifted program she's learning on a 4th grade level for 90%. So she's basically "relearning" what she learned last year. Lets hope and Pray that it works well for her! Her glasses got broke 3 days ago on the way to school. The bus slammed on it's breaks to avoid a dog, and her face hit the front seat. She's fine, but her glasses were in 2 pieces. We found a eye glass place today that welded them for $12! What a awesome find!!! She's due for new glasses on 12/1 and insurance will pay for everything. So finding someone to repair them (even temporarly) was great!

Franks doing well...healing from his accident at work, and getting back into thing. One day at a time ... right?

Oh yes..One last WOW on Jacob. He's talking up a storm! He's saying "car, go, zoom, click, caitlynn (sorta) Dada, and a few more!" When you ask him "wheres the tree...he'll point to it!!!" Where's the cat/kitty, he'll do too if one of the cats is around." What wonderful strides he's doing!

2007-09-12T14:22:00.000-05:00

This was found on a Caring Bridge page for a friends sons...and it touched me very much. It speaks so much for how these kids are. They are strong, couragous and ever so loveable.

Sometimes life seems hard to bear,

Full of sorrow, trouble and woe,

It's then I have to remember

That it's in the valleys I grow.

If I always stayed on the mountain top

And never experienced pain,

I would never appreciate God's love,

And would be living in vain.
I have so much to learn,

And my growth is very slow,

Sometimes I need the mountain tops,

But it's in the valleys I grow.

I do not always understand

Why things happen as they do,

But I am very sure of one thing ...

My Lord will see me through.
My little valleys are nothing

When I picture Christ on the cross

He went through the valley of death;

His victory was Satan's loss.
Forgive me Lord, for complaining

When I'm feeling so very low,

Just give me a gentle reminder

That it's in the valleys I grow.

Continue to strengthen me Lord,

And use my life each day,

To share your love with others

And help them find their way.
Thank you for valleys Lord,

For this one thing I know ...

The mountain tops are glorious,

But it's in the valleys I grow!

God is Great!!!

2007-09-05T14:55:00.000-05:00

After a bit of a run around today, Jacob's insurance (Tefra) Though the state of South Carolina is APPROVED! Thank God! That is such a huge weight lifted off our shoulders! And will save us ALOT of money that we cant afford to pay out.

Praise the Lord!!!!

It took 3 months....but it is awesome to have it done!

To everyone that helped us during this struggle, Shannon, Heather (mama), Susan...and others (i'm sure!) THANK YOU!

Some things...

2007-09-03T20:18:00.000-05:00

There are some thing's that i've been avoiding posting about on here. They eat me alive, and at times steal my breath away. But ive avoided it knowing that someday...somewhere, he'll see this blog. And with that thought is the hope that someday my father and I can reconcile our differences and become civil to each other. But with each day that turns into months, years...and yes a decade. It becomes harder and harder to think that someday this could end.

Before moving to South Carolina in May of this year I emailed him. (And yes I know he received it, I know from a very reliable source) I gave him the chance to contact me, and to see his grandkids. Caitlynn was 11 months old that last time he saw her. Yes she is 9 now! Jacob...well he's never seen that special boy. Even in the NICU (and yes I had him on the 'allowed visitor' list) he never attempted to see his grandson. I dont want to turn this into a bash, I have wonderful memories as a child. Humm I'll be 30 this year. Of going to my Grandparents with just him. Of camping trips...and holidays. Halloween was the bomb at our place! But with the good comes the bad, the aweful, and the sadness. There are things i've been told that I wont even type. EVER. Mind you he never layed a hand on me or my brother. Unless it was a swat/slap we deserved. BUT verbal is sometimes worse then physical. And what is not worse is just as bad.

I keep hearing songs lately that take me back in time. My dad gave me 2 CD's for Christmas the year my parents divorced. 1991... Reba and John Michael Murphy (cowboy songs). That year he gave me a rose...I pressed the one petal, and just threw it out last year. With that petal went my hope. My hope for even a long distance relationship with him. My Hope that my kids will someday know their grandfather. My hope that my Dad would one day grow up.

Honestly I dont know why i'm typing this. He'll never see it. Even though I know he has this blog address, I dont think he cares enough to check on us. To see how his daughter, son in law, and grandkids are. To care you must have a heart...a heart that has room for everyone around you, not just the ones that do exactly what you say.

Well...I guess that's all for now. I do still send cards. And I even contiplated sending pic's of someone elses kids. He'd never know anyway. But just incase he's reading...

Dad you have my address. You have my phone number. You have the power to change the way things are. I've tried, and failed. I am moving on...someday.

Back to that song thing again...

Dad..

Rascall Flats

I'm Moving on.

I've delt with my ghosts and i've faced all my demons

Finally content with a past I regret.

I've found you find strength in your moments of weakness

For once i'm at peace with myself

I've been burdened with blame, Trapped in the past for too long

I'm movin' on.

Another Song Post...

2007-09-02T23:54:00.001-05:00

Tired of them yet?

This one is for a few good, awesome, great friends out there!

http://artists.letssingit.com/tracy-lawrence-lyrics-find-out-who-your-friends-are-lv4x8xm

What else happened today.... Oh yes! Jacob is saying "Set" as in "ready...Set...GO!" he say's go too, so all you have to say is "ready" and he'll say set, go! or "One" and he'll say " Two, Go!" He's getting there! Only took 2 years 11 months, but hey he's trying!

We took Caitlynn to a Greenville Drive game tonight, with fireworks! She had fun, the game was nice to watch. They didnt win....but oh well. www.greenvilledrive.com

Have a good holiday all!

Frank is out of work...& Me!!!

2007-09-01T08:20:00.000-05:00

Till Tuesday. Last wednesday he fell at work and got taken to the ER. He hurt is right knee...and his back. So far thankfully it's just bruised, and he is starting to walk on it again some. The doc wants him weaning off the crutches this weekend. So this week Mom-Mom got to take Jacob to daycare one day...and forgot to give them his lunchbox, so she went back. Friday was "B"ear day at school. Bring your favorite bear! So Snowy went to daycare with him Friday, and got left behind...thankfully they were still there when Frank called!! J would of been lost without that bear for a 3 day weekend!

Jacob is still sounding Wheezy. We've upped his flovent/albuteral, and he's not showing outward signs of distress (retracting) ... but something is brewing, please keep him in your prayers.

Caitlynn's school sends home "thursday folders" and a report for their weekly behaviour in it. Out of Great, Good, Fair or Poor. She got a Great!! And they did not have checked off "talking in class" which is a big challange for her. WOOO HOOO! Now that we know this is sent home we've set up an incentive program for them. Greats are worth $2.50, Good's are $1.00, Fairs dont give money, but dont take it away either. And Poor's Take away $2.50. Her teacher (or all of 4th? not sure) is setting up a money "debit" acct for the kids. They get $2 for being in class. And $2 for not getting a check mark that day. So they can earn $20 a week. Then there are other things that would make them loose money. IE: no name on paper -$1, Check Mark -$1 each time.....and other things. They will get a paycheck each week, they can keep it, or cash it. But it's only good towards the general store they will open every other friday. Sounds cool! I'll let you all know how she does!

Now for the MEEE part of this post! Scroll all the way to the bottom...and check out the numbers on that ticker!! OMG i'm sooo stoked! I'm 1/4 of the way to my goal!

Another Song

2007-08-31T09:24:00.000-05:00

This one is awesome...It's a new one by Carrie Underwood called "So Small" For you SN parents out there....the one line is awesome! here...just see for yourself!

Carrie Underwood So Small Lyrics

Yeah, Yeah

What you got if you ain't got love

The kind that you just want to give away

It's ok to open up

Go ahead and let the light shine through

I know it's hard on a rainy day

You wanna shut the world out and just be left alone

But don't run out on your faith

Cause sometimes that mountain you've been climbing

Is just a grain of sand

And what you've been out there searching for forever

Is in your hands

And when you figure out love is all that matters after all

It sure makes everything else seem

So small

It's so easy to get lost inside

A problem that seems so big at the time

It's like a river that's so wide it swallows you whole

While you're sitting around thinking about what you can't change

And worrying about all the wrong things

Time's flying by, moving so fast

You better make it count cause you can't get it back

Sometimes that mountain you've been climbing

Is just a grain of sand

And what you've been out there searching for forever

Is in your hands

Oh, and when you figure out love is all that matters after all

It sure makes everything else seem

So small, yeah yeah yeah yeah yeah

Sometimes that mountain you've been climbing

Is just a grain of sand

And what you've out there searching for forever

Is in your hands

And then you figure out love is all that matters after all

It sure makes everything else

Oh, it sure makes everything else seem

So small

Yeah, yeah

What a night...

2007-08-28T15:36:00.000-05:00

Last night, while getting dinner together, Jacob decided that the table leg looked like a nice place to hit his head. The thud, and scream...then silent, breath holding scream...scared us shitless! He wouldnt let us get ice or cold water on it (sensory issues)....and after calming down, he grabbed a paci, went to his bed and layed down. At that point we decided to take him to the ER. It's not like him to just want to go to bed.

Thankfully it's just a contusion, with severe swelling. It's going down now, but will leave a huge shiner.

We had to watch him today for any signs of him being 'off' .. and he did well. Even found a birthday gift hidden in Mom-Mom's closet ;) Instead of grabbing it though he grabbed Mom's hand and took her over like "is that mine???" or "Can I have that??".. we gave him something else Diego to distract him...and rehid the gift!

He also boycotted his nap for a long time today...so he must be feeling better! And he's telling everyone around him to "GO!!" or "Go Go" ...

Do you ever...

2007-08-27T12:04:00.001-05:00

Hear a song on the radio, and think....I could of said that. Kellie Pickler..."I wonder" How that song touches my heart. It's talking about the relationship between a mother and daughter. But if you just change it to father...and a few words get adjusted. God...That first stanza is us.

Sometimes I think about you
Wonder if you’re out there somewhere thinking bout me
And would you even recognize
The woman that your little girl has grown up to be
Cause I look in the mirror and all I see
Are your brown eyes lookin back at me
They’re the only thing you ever gave to me at all
Forgiveness is such a simple word
But it’s so hard to do when you’ve been hurt

Just thinking outloud here people...dont mind me.

I guess I havent...

2007-08-27T11:17:00.000-05:00

Update in a bit. The first week of school went well. No major mishaps, the bus came on time, and dropped off. Ahhhh sounds like the start of a good year!

Last friday we had a meeting with the school district for Jacob. Wanna hear a shocker? He qualifes for preschool due to his disabilities. WOW Whoda Thunk? (if you dont sence the sarcasm....read that again) He has a Audiology apt on the 6th, then another meeting with the school within 3-5 days of that. They say they will have him "ready to start school on his birthday". So on 9-25-07 I will have a 4th grader and a PreSchooler. They are, however, very unsure about where to place him.

Houston Elem has a Preschool "child with developmental delay's" preschool. It's a blanket term to encompass all his delays. Therapists would do therapy there. They do have a nurse on staff, but she's not used to tube feeds. He needs 2 feeds during the school hours of 830Am and 2Pm. He would be bussed from the daycare to there. About a 4 min drive.

McCarthy-Teszler school is a special needs school with on site therapy, with their own rooms. It's a low student to teacher ratio, but a higher ration of more severe needs children. They are very used to G-Tube feeds, he would need 2while there. School hour is either AM or PM ... about 2 hours 30 min's total. He would be bussed, drive is about 20 min's.

I'm leaning towards Houston right now as long as we can teach him about his tube. I think he needs to be around typical kids, or kids with less severe problems. He TRIES to talk..and currently is saying 3 words!!! "Click, Zoom and GO!!" We may be able to work it so that he needs 1 feed....we'd just have to play with the time of the feeds... UGH!! The decisions!

Today he has a GI apt with his new GI. Dr. Jonathan Markowitz used to work with our old GI (David Picolli) out of CHOP! So we're very pleased to meet him today. He's almost out of Previcid, and we're praying for some samples very soon from him.

A 4th Grader!

2007-08-21T21:55:00.000-05:00

Can you believe I have a 4th grader in the house? OMG where has the time gone? She had a great first day of School on Monday. And came home to find 2 birthday cards and a Birthday package!

G-Ma And Pops sent her a gift card to walmart! Thanks G-ma and Pops!!

And from Aunt Judy and Uncle Jack a card with $10 in it! Thanks you 2!!!

And the package was from Nana Hilary! She was so exciting to hear from Hilary...and loved her gift!! Hilary...we Miss you too!

Needing some Prayers

2007-08-20T08:43:00.001-05:00

For my Grandmom Davies today. She is 78 years old, and going strong. But had to have surgery on her spine today. In 2 places, one laprascopic and one with a full insision. Apparently there are nerves being caught and she's in severe pain, cant walk...and so on. Please keep her in your Prayers Today, and for the next few weeks to follow.

Say "CLICK"

2007-08-14T21:02:00.000-05:00

OMG.....I know he's trying soooo hard! Jacob has become a huge Diego fan! And he's been watching "on demand" Diego-Ana The Anaconda. And Diego say's "Say Click, Take a Pic" and Jacob is trying to say CLICK!!!! I really think we can count this as his first word! He tries to say "HI" and "Hello" at times to, but this one you can ALMOST understand. 1 Baby Step at a time...he'll get there, he's been doing alot more babbling lately...he reminds me alot of a 10 month old :) (with Attitude of course ;))

We leave for the Campground tomorrow morning. And will be back Sunday. Pray all goes well, and we all enjoy our time away!

Today my scale was especially nice to me. It said 248.2 which is 22.8 pounds LOST!! It's never felt so good to LOOSE something ;) I broke the 250 pound mark too...which is AWESOME!

Caitlynn had a early birthday party yesterday. nothing big, just Mom-Mom, Pop-Pop, Us, John, Kerie and Kammy. She had a nice time, and got some cool Tinkerbell stuff, and a new Nintendo DS game. We went out for ice cream instead of cake...and had a great time.

They are Coming!

2007-08-09T10:34:00.000-05:00

Wooo Hooo! John, Kerie and Kammy will be here tomorrow, they are leaving Levittown, PA around 3am...and i'll meet them sometime early afternoon depending on what traffic they hit. We have a busy vacation planned, with lots of fun in the sun. Pool time, water time at the park...and ;) apartment hunting for them. John's looking to relocate to here...it's be great having them closer. Kammy, poor kid, is driving john crazy saying we're leaving today, today is Thursday. He doesnt understand that he has to go to bed first to leave :)

Camping starts next wednesday... We're going to a state park in western SC. http://www.southcarolinaparks.com/park-finder/state-park/750.aspx It should be alot of fun, and some nice hiking trails. And now that Jacob is liking the water the swimming will be fun too! :)

I'll be in touch till Wednesday morning. But keep the Evans' family in your prayers for a safe trip as they leave EARLY tomorrow morning, for a 12 hour drive.

Women Problems :(

2007-08-08T14:19:00.000-05:00

Is there no end in sight? My God where does this pain come from? And dont feed me that line about Eve taking the first bite from the Apple... UGH! Nobody should have to go though this type of pain on a monthly basis!

K ... vent out. So sorry to all you bloggers that had to hear that.

~~~~~

Weight update! I lost 2 ounces this week! With Aunt Flo stopping buy for a visit that's not bad! She's also visiting a fellow blogger....how I'm not sure! You should not be able to be in 2 places at once...I volunteer her to go to A! :) Sorry A!

Jacobs weight...he got weighed yesterday morning and came in at...

30 pounds!!!

Thats up 12 ounces in the last 10-12 days...this new formula is working wonders for him!! He's also eating a bit more by mouth...he's LOVING puff's again. And even licked on a ice cream cone yesterday :)

I want to send a HUGE Thanks! To Shannon for giving us 100+ bags for Jacob's feeding pump. We were getting a bit desperate...down to 2 bags! And a huge WTG for her son Aidan who is getting his G-Tube removed on the 14th! Keep him in your thoughts everyone!

Also to Jen...for the 10+ cases of formula that she's sending my way. Our friends are coming from PA on Friday and they are bringing it with them. The $$ she just saved us is unaccountable! And it's a higher calorie formula so we might be able to cut out the carnation instant breakfast and save a bit more $ too.

Caitlynn starts school on the 20th, her teacher is Miss Thurmond...and there are 24 kids in her class. Let's wish her a wonderful 4th grade year! (where did the past 9 years go??) She'll be 9 on the 16 and we'll be having a small party for her at the campground.

~~~

Great update here...we've heard for Nana Hilary. She had us worried there for some weeks being out of touch. She had alot going on in 'life' in general...we know how that is dont we? She's doing better and still wants to come down to visit Jacob and Caitlynn. Cant wait to see her, i'm sure Jacob will go crazy! :)

I've been tagged!

2007-08-05T20:24:00.000-05:00

Ok Andrea...this if for you girly!

The Rules:
1. I have to post these rules before I give you the facts.
2. Each player starts with eight random facts/habits about themselves.
3. People who are tagged need to write their own blog (about their eight things) and post these rules. (**if you’re a non-blogger, you can email them!)
4. At the end of your blog, you need to choose eight people to get tagged and list their names.
5. Don’t forget to leave them a comment telling them they’re tagged, and to read your blog.

My eight random facts and/or habits:Ok..well, I'll pick 4 facts and 4 habits to entertain you with! What fun this will be.

Fact #1 - I was born on the dining room floor. (Is that starting at the begining or what!) My Aunt Judy delivered me, and could not tell if I was a boy or girl. (she had 3 boys and 1 nephew...guess she didnt know girl parts?)

Fact #2 - I need to sleep with some sort of sheet/blanket up near my face. I always have...and even had a sheet that I had since Elem School. It is no longer, thrown out in the move. My only theory is my reflux, it helps to breathe in warmer air... Hummm ...sounds good.

Fact #3 - I knw someone going to an audition for American Idol.. Maurice Peake....I knew you when! Good luck!! (If I can get the picture off my cell phone i'll post it!)

Fact #4 - I once worked 3 jobs at one time. 2 of which went out of bussiness! Does that make me a bad luck charm? If so The Home Depot is in trouble then! LOL

Habbit #1 - Andrea's number 5 is my number 1!!! I have to log onto P2P or my blog before going to bed.

Habbit #2 - Talking about my kids. Researching new things for Jacob, and finding more books, and new things for Caitlynn. (there's that internet again!)

Habbit #3 - My DH swears I sleep with my mouth open. I swear it's a rumor, vicious rumor! (my mom does for sure though... :))

Habbit #4 - I take my camera everywhere! You never know where that next shot will be, or where the next milestone will JUMP up at you!

Now...Who to tag!!

Angela http://www.jackrileywilhelm.blogspot.com/

Jennifer http://mamalamaroo.blogspot.com/

Chelle! You know I gotta Tag you Girl! http://confusedmommyof3.blogspot.com/

And my sweet Cousin! Tammy http://www.mynavyville.com/wordpress/

And last...but not least! Lesley! http://lafuze.blogspot.com/

Happy blogging all! And if you yell cause I tagged you...just go back and talk to Andrea!

http://www.andjonbabyluke.blogspot.com/ :)

He likes it!!

2007-08-04T10:30:00.000-05:00

Finally...Jacob likes the pool! He was very unsure of it at first, but he's becoming a daredevil now! The arm floats work great on him, I Have to hunt down another pair. Our walmart is out, ebay may be my only choice.

Here's some picture to enjoy.

Oh yes, Formula update...he didnt loose...but he didnt gain.
29lb 4oz still. We're upping him to 1 container of benecalorie a day instead of 1/2.

OMG I'm soooo Excited!!!

2007-07-31T08:02:00.000-05:00

20.4 Pounds people!! I've lost 20.4 pounds in the past 8 weeks! I'm sooo estatic!!! I'm 1/5th of the way to my 100 lb goal...it's sooo awesome!

We've also started Jacob on a new feeding regimin. Keep him in your prayers in the coming weeks as we figure out if this will work. We're mixing in a blender ...

3 Cans of Nutren (750 Calories)

6 Tbs Baby Oatmeal (90 Cal)

6 TBS of Carnation Instant Breakfast (130 Cal's)

1 stage 2 Meat (80 cals)

1 stage 2 Veggie (70 cals)

1 stage 2 Fruit (80-100 cals)

1/2 container of BeneCalorie (165 cal's)

1 crushed vitamin (looking for liquid vitamin's now)

We're then filling his school jars (2 mason jars and 125cc's in 2 other jars) for his 4 feeds at daycare.

The remainder he get's overnight that night. To the overnight we're adding about 5-7 oz of water for fluid in the summer.

He needs weight...he's in desperate need of weight..he's at 29.2lbs and has not gained in about a month to 6 weeks. He's had 2 bad illnesses, and 1 mild one...and i'm sure that's the reason. We'll weigh him Monday then again next Friday (when our friends come in from PA) so we know if this is working...if so...we'll take the blender camping! :)

Called Nestle Today...

2007-07-30T19:21:00.000-05:00

The number on the Nutren JR Cans. We're starting to run low, with no end in sight for the insurance.

I asked them if 3 cans would meet J's nutritional requirements. It will thankfully till he's about 3.5 years So we've cut back his formula and added back in...

Water, Carnation Instant Breakfast 6 Tablespoon's1/2 contanior of BeneCalorieBaby Oatmeal (6 tablespoons)3 Jar's of baby food... 1 meat, 1 veg, 1 fruit.We're giving him a 2 week trial on this ... and Praying for the best.He'll get weighed tonight...then again Monday...and Friday of next week, before we go camping.

The great thing about this call is the lady gave me the local Nestle rep! And said to call her and tell her our situation and she can send me a few cases....but at the same time the lady on the phone is sending us a few cases This is awesome!!!I always forget you can call these places...it's great to see human kindness!

The trip...

2007-07-28T07:52:00.000-05:00

The trip we took the other day was quick. But relaxing in a way ;) The hotel pool was nice, and we all got a good night sleep! We think we'll go back again, but not for a couple years. I prefer someplace quieter and less traffic!

We didnt get the chance to meet up with Leo...Franks inspection locations took longer then expected, and Jacob was tired of being in the car. But maybe someday.

We had Jacob back at the doc's yesterday for his follow up on his URI and Ear infection. And she put him on Amoxicillian...apparently there is STILL fluid on his one ear, and part of the URI is hanging on.

Off we go!

2007-07-24T10:27:00.000-05:00

Tomorrow morning we leave for Myrtle Beach! We've never been so i'm sure it'll be fun! It is a working 2 day vacation, since Frank is working, his boss is paying for the hotel room for the night since he has a few jobs in the area. But the evening's will be fun :D

We're meeting up with a online friend (Leo) tomorrow night, and having dinner at her place. Should be fun! Wonder what Jacob will think of another child with a tube...he's never met another tuber before!

Yesterday we had fun...we went to Barnet Park here in Spartanburg. They have these awesome sculptures around town, and 2 of them (at least) are there. Here are a few pictures of the fun we had... Enjoy!!

And Friday brings...

2007-07-20T10:05:00.000-05:00

No relief. Frank ended up taking Caitlynn to the ER yesterday, and him and her walked out with antibiotics! Both of them have Strep....UGH!

Today is Paul's Birthday!! Happy 29th Birthday Dad! Hope you enjoy your gift :)

The window people are still here...and now the pool people (Paul's gift ;)) and Monday the Gutter guys will be here. Geese...it seem's never ending!

BUT...get this! We have a counter and working sink and dishwasher again! After 2 months of using bathroom sinks and buckets to do dishes this is great!!

And now..

2007-07-18T08:18:00.000-05:00

It's Caitlynn's turn. She woke up at 2am with a temp...this morning shes' 103.7...UGH.

The past week

2007-07-17T09:51:00.000-05:00

Nothing can ever be easy ... can it?

Jacob came home from daycare last friday with 102.9 temp...Rectal. By Saturday he was the same...Sat night came around and he's walking around holding his throat, and just laying in bed with me.

So off to the ER. He's got a double ear infection, Strep Throat, Sinus Infection and Upper Resp infection. They gave him a shot of an Antibiotic...and said that should be all he needs. Hummmm I'm doubtfull.

We call the place for a followup....and they cant see him till the 27th. We kept him him yesterday due to retching and vomiting...not much , but he was uncomfy and his temp was still above 101. Today he went to school, but ... I noticed him holding his throat. So i'm calling the clinic back to see if they can get him in sooner. But when I asked him if he wanted to go to school he signed "car ride" so I know he did. Yesterday when I asked he shook his head no. :( I'm so pleased that he answered a question! But sad that he felt that bad.

We're getting very excited about our upcoming trip...I think it'll be great to get away and see some new things.

Vacation Change...

2007-07-13T09:45:00.000-05:00

We were traveling to Ocean City MD for Vacation this year. We were meeting John, Kerie and Kameron there for a week of fun in the sun! But some things came up, as they were sure to! So we changed our plans around!

Now...John and all are driving HERE to see our wonderful new home! And spending a few day's of fun in our pool and sun ;) On the 15th we're doing a FIRST...camping at a STATE park! It seems awesome...and the price was fab! Huge site too 50x19 feet...so we can put both tents on one site, and save more! There are about 4-5 hiking trails around, along with a lake...and streams...just FUN! It's Oconee state park, about 2 hours from here....I'm sure there'll be tons of pic's to post when we get back!

http://www.southcarolinaparks.com/park-finder/state-park/750.aspx

zoo

2007-07-11T20:51:00.000-05:00

Just for you John..

Update on Z-Coil's!

2007-07-10T10:51:00.000-05:00

WOW it's been one Month since mom and I drove to NC for our ZCoil shoes! And it's been one month that i've been...

Pain Free!!!

It's great being able to come home and DO things. Not just have to get off my feet! It's wonderful...awesome! I've reccomended them to soo many people, and get lots of questions about them at work.

Let's just way... WOOOO HOOOOO!!!

Oh yes...let's add another update!

Jacob found a cup he can drink out of! He's still chewing, and doesnt know how to suck at all. But he can get liquid out of this cup, without spilling it all over the place! He's also attempting to eat small bites of food. Yesterday at school he had 5 bites of cooked carrot, and 5 bites of pineapple! Along with 3 crushed goldfish crackers at snack! WTG Little man!! After searching the WWW and not finding the cup anywhere I went to the next best place. http://www.parent-2-parent.com/ and asked there! Finally got the name and brand...it's a Gerber Nuk Training Cup. Ment for age 6 months. I went to stores today and found 2 more for him at Walmart! He now has Blue, Green and Red :)

This week...

2007-07-07T21:24:00.000-05:00

...has flown by! Caitlynn had no Summer Camp this week....but she had a blast being home with Mommy, Mom-Mom and Daddy and Pop-Pop. Since we were all off different day's it worked out that Paul didn't have to watch her as much as we thought. There is one more week to come that she's home with him, and hopefully it wont be bad. Since he works nights she has to be quiet while he sleeps. She's very excited about a new addition to our extended family...it's large, and filled with water. Any guesses? LOL

Jacob did great with school this week! He really loves going to visit Miss Brandi each day. She gave him a lime popsicle the other day and said he loved it :) So I'm taking in a disposable camera....if she does it again she can get some pictures of him :) His bruises are almost gone from the bites he got at school. It was heartrenching to have to understand that Jacob will not tell if something is wrong. He'll cry, scream...but he cant say "Jimmy" bit me. Or even "Owie!/Boo Boo" His communication is so limited...it's sad to realize that this is not changing any time soon. A nurse for the State of SC came out on Friday to assess him and see if he meets the "institutealized level of care" and we believe he does, she seemed to think he does too. But since she cant say anything to us we wont know anything untill we talk to his caseworker this week.

Today I was off...AMAZING! So we went to the Greenville Zoo :) The kids had a blast, and we had a fun time too. Great exersize! And with my new shoes I was ABLE to walk it without a problem!! It's sooo neat to NOT be in pain at the end of the day! I do feel a difference if I dont wear the Z-Coil's...or walk around home with no shoes....that's a huge NONO! These are wonderful i'd reccomend them to anyone in ANY pain! (feet, legs, back....)

Now for a few pictures...

Oh yes! I added both Mine & Franks weight tickers to the bottom! Check back every sunday for an update! Weigh in is tomorrow morning!

Weight Loss, and other stuff.

2007-07-01T08:52:00.000-05:00

Yup! You read that right! 13.8lbs lost! On my way to a goal of 100lbs by next spring/summer.

When we moved here I was 271. When we started the diet I was 267.5. I've talked to my mom and she's agreed to put my starting weight at 271 since we know that's what I was at when I started watching what I was eating. . .just not officially dieting.

The kitchen is getting there, slow but sure. The cabinets (except the one that got broke by the delivery company. That should be here tomorrow. At that point we can set up a measure for the counter top (it'll be a black color) and that's the begining of the end!!! We got a new kitchen table yesterday from Ashley Furniture. Ahh There it is right on the left :) That should be here about mid July. The other table we have is going near the window, it's round and has the same wood top, off white legs, so we ordered to extra chairs from this set since we dont have the chairs for it. It's been a long process, and we cant wait (after a month) to have everything back to normal....

Jacob and Caitlynn got a small pool on Friday. Frank set it up yesterday (while I was at work) and let them swim! Jacob LOVED it!!! It was his first time in something like that, and he did very well!

Alot has been going on...

2007-06-28T17:24:00.000-05:00

Jacob got sick last Saturday/Sunday...but we thought it was just him not tollerating his tube feeds. Then Monday Caitlynn got sent home from Camp....Sick...By Monday night Paul was sick, by tuesday morning...Yup Mom was sick. Frank and I were to follow. Paul and Frank's is still hanging on...but the rest of us are pretty much better. Jacob's still having some problems getting all his calories in...but doing a bit better ...it takes him forever to recover from the smallest illness.

Work is fun...NOT. We have a new front end manager...well let's just say she and I dont see Eye to Eye. I ended up going to management about it today. Im glad I had my review already otherwise she's the one who writes it ;)!

I guess illness is good for something...it jump started my weight loss again! 7.5lbs down...but weigh in is not till Sunday ;) See the chart below :) I started this diet at 267.5, but when we moved I was at 271...so really it's more. Just not while "on" the diet.

Jacob got bit at school (daycare) today. Both arms by the same boy. The director will be talking to the other parents. We're just praying it doesnt happen again. Send some hugs his way, poor boy.

6lbs!!!

2007-06-17T21:03:00.000-05:00

This is a bit different....This post is about me .. briefly. Mom, Frank and I started a diet 2 weeks ago. Franks lost 2.5lbs, and i've lost 6!!! I'm doing good, and drinking lots of water!

Wooo Hooo! Maybe this could be a whole new lifestyle :)

28 pounds and 10 ounces...

2007-06-11T09:50:00.000-05:00

That is what Jacob weigh's now. He did grow, he's at 38" tall. So the weight loss and the height growth make him look even skinnier. I'm scared and worried about him. His lunch and snack at school today is 240 calories each...and that's pushing the limit with him.

And he's not tollerating his full feeds overnight, he's waking up screaming (as if in pain) around 2am. Last night we hooked him up in the evening and went for a walk...he didnt do real bad with that....so it could become a nightly walk.I just went and bought him a pair of 12 month shorts...and they fit with room to spare.

We're using Carnation Instant Breakfast, 4 cans (or as close as we can get to it) of Nutren Jr...and Baby food to up his calories and still try to keep him hydrated. I can honestly say this is his hardest summer yet. We even went out for ice cream last night, he LOVES soft serve vanillia. We were praying to get some extra calories in him. :( He didnt lick it once.

Could this be the answer?

2007-06-10T20:49:00.000-05:00

As some of you know i've had pain in my feet for over 2 years. It's Heel Spurs/Planter Faciatis. It's pain that even after you get off your feet at night...it's bad...so bad some nights I cant walk. Well we noticed a pair of shoes a lady at our new Home Depot wears. And started talking to her about them....only to find out that 2 others in the store also wear them. Ummmm this is starting to look good! Not one of them had 1 bad thing to say! Even the price was not bad after hearing the reviews. They are called "Z-Coil's" www.zcoil.com and can NOT be ordered over the internet...so mom and I drove to Morgantin (sp) NC to get them on Friday. Today is Day 2.5 of no (relativly) pain! Frank, Caitlynn, Jacob and I even went for a walk tonight!! And still they don't hurt!!!

Here's a picture I took tonight so you can get the idea....wish us luck! Mom now owns 2 pair...and me 1...Franks interested too! They are supposed to be great for foot, back and hip pain...and leg pain.

Sorry to say...

2007-06-02T12:14:00.000-05:00

The whispering has stopped. I know a few of you have asked me, so I figured i'd update you on Jacob's eating progress. There is none. He had a Asthma attack on Tuesday...and backslid completly to eating ... Nothing. He did take one bite of baby food for me today. But after that refused, and coughed a few times. I'm not happy with the coughing, it can be a sign of aspiration or penatration. Or simply it could be him protecting his airway. His weight came up slightly this week, we added some Carnation Instant Breakfast packets to his formula mix, it adds 130 cal's a day. If it continues to help...that would be great.

Caitlynn....well we havent seen her since 5/24! She left to spend the week with Aunt Donna, Uncle Bud, Alex (now called "CHRIS") Allison and Timmy. She's having such a good time they decided to keep her for another week! She'll be coming home either Friday or Saturday of this week, then we're going to Edventure in Columbia on Sunday. http://www.edventure.org/home.asp It sounds awesome and i'm sure both kids (and Frank) will love it! We're meeting at least 2 other P2P families there!

Gotta run...Have a great day all!!

We are whispering here...

2007-05-28T13:30:00.000-05:00

Very quietly I want to tell you all what has happened here in regards to Jacob in the past week.

Last week Jacob started getting dropped off at Daycare...and was NOT crying! After 2 weeks of hearing him cry every morning this was a huge blessing to Frank and I!

Last monday jacob got a new teacher! She's permanent in his room and her name is Brandie. So far she's doing great with him, she learned his feeds the first day! And is willing to go the extra mile with him. She sat near him while he fingerpainted the other day, so that he could sit in a regular seat and not his booster with straps!

On Thursday I bought some more baby food. Jacob get's 2-3 Jars a day of stage 2 though his tube. We water it down with water or formula. I was mixing some up for him at night and had some on the spoon. Said "ready, Set..." and he opened his mouth for it!! He took 6 bites off a spoon that time! That night at dinner he ate (by himself, with us refilling the spoon) a tablespoon or so of his fav cereal .. Cinnamon, rasin granolla.

This morning he ate about 10 mini animal crackers, and today at walmart I told him "anything you want, Just ask!" he pointed out a box of cinnamon graham cracker sticks, he at (NOTHING ON HIS SHIRT!) 7 of them in the store! At the end of each one i'd say "are you done?" he'd shake his head YES! I'd ask if he wanted more, he'd sign more and reach for the box!

Remember we're whispering this! He's come close to the point before only to backslide to NOTHING...so we're cautious to say the best. But I wanted to let you all know!

Last day of School...and Daycare Update

2007-05-23T09:28:00.000-05:00

Today is Caitlynn's last day of school! She will have completed the 3rd grade, and OMG we'll have a 4th grader on our hands. She's done well with the move and the transition. And seems to enjoy going. Tomorrow she leaves for North Carolina, she's staying there till the 1st of June with my Aunt and Uncle, and their 3 kids. I'm sure she'll have a blast!

Jacob...he's doing better with school. They finally found a teacher for his room, they were rotating teachers in and change bothers him. Ms. Brandie is his new teacher and she say's he is her little shadow. He's had 2 great days since she started on Monday. We have him wearing his braces in the AM now, it's just to hot to wear them all day. Since they go outside to play in the morning it seemed the best option. I'm going to see if I can leave my camera with her one day. He is napping on a mat with other kids. He's playing on the playground...and yesterday when I went to pick him up he was sitting at the table reading! She was asking him "wheres the leaves" and he pointed to them!!! He also ATE by mouth! 6 baby spoons of Papaya (baby food) and about a tablespoon of a oatmeal baby food! He opened for the first 6, the oatmeal he did on his own!

Franks work is going great. Pay is better then in PA...since he's a supervisor here and saleried.

My work...well it's home depot. What can you say? The HR seems nice, and so does a few others. Yet where you get cashiers you get petty BS. But that's normal in all stores. They offered me a steady 9:30-6:30 M-F....But I dont think i'll take it. If Jacob get's sick it's me calling out...Franks always home weekends. So that leaves me to call out for school days if he cant attend or has a doctors apt.