Our Contact Info

For those of you who have this site addy....and are interested in contacting us during the move.

Our Cell Phone numbers are...

215-584-3247 (me)
215-584-3248 (Frank)

And our new address will be (dont send anything there untill after I post here, and settlement is done!)

448 Ransdell Drive
Spartanburg, SC (uh...gotta look up the zip! :))

Medic Alert

I just ordered Jacob a Medic Alert Bracelet and Shoe Tag. Since he'll be going into daycare after we move to South Carolina in 1 month 1 week and 3 days, not that we're counting! We figured it best for him to have something on him identifying him. Especially since he's still Non-Verbal...So it'll say..

Asthma

G-Tube, NPO

No Reglan or Augmenton

He's technically not NPO at the moment....but only about .01% of his intake is oral. And it's the easiest way to explain to emergency workers that he cant have anything by mouth.

Jacob's new shirt!!

I ordered 2 shirts for Jacob a few weeks ago and they arrived yesterday during our day from hell.





The first one he got say's "Tough as Nails"....and it is so fitting for him! He's one tough little dude!







The 2nd one say's... "I can eat and sleep at the same time, Can you?" ...Sooo fitting!!

Jacob's doctors have decided on a "course of action" for him and the MRSA. First for the next 10 day's he's on Bactrim and bactroban (in his nose and g-tube site). Frank, Caitlynn and I are bathing 2x's in the first 7 days in phisohex soap. We will use it very carefully on Jacob 2x's also. After his 10 day's of Bactrim we are to make a apt with Kids 1st for a 'recheck'. If the MRSA is still present...we go to step 2. He will proably be admitted for a round of Vancomyacin.

Pray for us...him especially that this goes away and stays away.

Pulmo Apt Update

We saw Pulmo today...for a 9am apt. Finally saw the doctor at 11!! OMG This guy is ALWAYS a couple hours late! (But he is a great doctor) Jacob's feever is back....has been since last friday. I kept hoping and praying we'd see some sign of ILLNESS! (is it really bad when you hope they are sick??) He's running around 100-101 (rectal) and acting perfectly fine!

The only major difference....he's drinking more again. And coughing while drinking, not constant...but enough to cause us to notice. KWIM?

His pulmo thinks he's aspirating on the liquids again. And that his swallow study was not "completly accurate" since he only took 1 tsp of liquid. I have to agree So for the next week (till monday the 12th) we're taking away all cups and drinks. I'm so upset and depressed...he just learned to sign Drink! I hate not reinforcing his new signs....especially when it takes him so long to learn them. But I cant see any other explanation for this feever...The first feever in January started when we introduced the nuby cups....I thought this then too....but he ended up with a GI bug, then a ear infection.....but there were 7-10 day's in there with no infection...and still a temp.


On the up side we did see Rachel P today! It's hard to believe he's been out of the NICU at CHOP for 2 years! I gave her this site addy....so if she stops by maybe she'll drop us a line ;) Congrats Rachel!!

Signing Time!!!

Jacob has become very interested in watching his Baby Signing times videos and has picked up so much!!

He now can sign on his own...
Eat
all done
cracker (his own variation)
drink
more

with prompts and sometimes on his own...
Thank You
Train
Banana
Milk...

He's starting to really take off!!!!


PS 61 days till our move to South Carolina!!!!

I found a daycare for Jacob...I think being around other kids will do wonders for him!