Update in a bit. The first week of school went well. No major mishaps, the bus came on time, and dropped off. Ahhhh sounds like the start of a good year!
Last friday we had a meeting with the school district for Jacob. Wanna hear a shocker? He qualifes for preschool due to his disabilities. WOW Whoda Thunk? (if you dont sence the sarcasm....read that again) He has a Audiology apt on the 6th, then another meeting with the school within 3-5 days of that. They say they will have him "ready to start school on his birthday". So on 9-25-07 I will have a 4th grader and a PreSchooler. They are, however, very unsure about where to place him.
Houston Elem has a Preschool "child with developmental delay's" preschool. It's a blanket term to encompass all his delays. Therapists would do therapy there. They do have a nurse on staff, but she's not used to tube feeds. He needs 2 feeds during the school hours of 830Am and 2Pm. He would be bussed from the daycare to there. About a 4 min drive.
McCarthy-Teszler school is a special needs school with on site therapy, with their own rooms. It's a low student to teacher ratio, but a higher ration of more severe needs children. They are very used to G-Tube feeds, he would need 2while there. School hour is either AM or PM ... about 2 hours 30 min's total. He would be bussed, drive is about 20 min's.
I'm leaning towards Houston right now as long as we can teach him about his tube. I think he needs to be around typical kids, or kids with less severe problems. He TRIES to talk..and currently is saying 3 words!!! "Click, Zoom and GO!!" We may be able to work it so that he needs 1 feed....we'd just have to play with the time of the feeds... UGH!! The decisions!
Today he has a GI apt with his new GI. Dr. Jonathan Markowitz used to work with our old GI (David Picolli) out of CHOP! So we're very pleased to meet him today. He's almost out of Previcid, and we're praying for some samples very soon from him.
Monday, August 27, 2007
I guess I havent...
{{hugs to you}} From Trish ~CnJ's Mommy~
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2 comments:
Great to hear the report.
So???? What did you finally decide?
I havent decided *cover face*
Ummm We still have 3 weeks right??
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